Hearts for Hadley is headquartered in Knoxville, TN , and is a c 3 organization. EIN: Donations are tax-deductible. The IRS ruling year for tax exemption was Encompass Scores are calculated from one or more Beacon Scores. This organization is either not eligible for a Beacon see below , or that Beacon is not yet available. Find out why. Looking for this charity in our old design? Back to Top.

Hadley Alexander's Story


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Hadley was born a healthy, happy baby who was progressing normally until she turned six months old. Primarily, Hadley began refusing to eat. When they brought it up to their family pediatrician, they were told to give it time and keep trying. Because so many children adapt to eating solid foods differently, they were told it was nothing to worry about. The couple kept trying to giver Hadley food, but she continued to refuse and was instead constantly thirsty. It was when Hadley was eighteen months old and still not thriving that their Pediatrician finally referred the couple out to a specialist who did a kidney ultrasound and diagnosed her with Fanconi syndrome, which often goes hand in hand with Cystinosis. Marcu says that it took over a year to get the diagnosis.
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Most Americans associate Idaho with potatoes. Idaho, particularly Boise, is also known for having amazing local wineries and craft breweries. Our family is fortunate to be friends with several local winery and brewery owners who are caring and generous business owners. Over the past few months, Hearts for Hadley has held three separate fundraising events at local wineries and a brewery for cystinosis research. The first event was a glassybaby pop-up shop held at Potter Wines on November 2nd. Everyone had a great time enjoying a glass of wine or a wine tasting while shopping for beautiful glassybaby hand-blown candle holders. Every Monday throughout the year, Payette Brewing Co. Payette Brewing Co. In addition, they open their awesome tasting room for the event and let the non-profit decide how they want to raise money and awareness.
When most of us think about heroes our thoughts turn to characters like Superman or Wonder Woman, or people like police officers and firefighters, world leaders or war vets. But it turns out that heroes come in all shapes and sizes. When you first meet Hadley Alexander, she seems like a typical, sweet and exceptionally cute four-year-old girl.